TRAPS What is it?

TRAPS stands for Tumor Necrosis Factor Receptor-Associated Periodic Syndrome. It is a rare autosomal dominant disorder characterized by prolonged episodes of periodic fever and erythematous macules, patches, and edematous dermal plaques. The skin eruption usually lasts for 4-21 days (mean 13 days). There are numerous other systemic signs and symptoms associated with the syndrome including:




Conjunctivitis




Periorbital edema




Abdominal pain




Myalgia




Arthralgia




Pleuritic chest pain




Headache

This picture is how Lucas looked, when we first realized this was something more than him just getting sick all the time.